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  1. hyacinthgirl hyacinthgirl is offline

    Albuquerque, NM
    United States

    Posts: 6,177
    Joined: Feb 06

    Aug 2nd, 2009 (8/2/2009 1:40am)

    Hey guys :)

    Ess told me there is a giant thread somewhere full of well wishes so thanks.

    Jacob has a JPA tumor. It's considered benign but it (rarely) has potential to come back as something more malignant at some point.

    Thursday's surgery went well. The surgeon removed the cystic component of the tumor, which reduced the tumor by about 25%. The rest was too vascular and close to the optic nerve and some other important parts of the brain for him to feel comfortable trying to remove more. Next week we begin a 12-18 month chemo regimen and in a few years (who knows where treatments will be then) we will probably attempt radiation to remove it completely, but no radiation can be safely done on such a young kid (Jacob will be 14 months on the 6th).

    He had a port put in today that will be used for chemo infusion, a little semi-permanent thing under his skin that allows access to the subclavian artery.

    He is, by all accounts and all things considered, doing fantastic. I'm very proud of him already.

    I'm kind of in this weird daze still. Mostly I just keep doing everything I think I should be doing and I'm told to do and I keep thinking, "This isn't real. I will wake up from this nightmare soon."

    Thank god we are insured. Now to pray Anthony keeps his job in these rough times. I was having trouble logging in so sorry I didn't get an update sooner. Thank you for your love and support... <3 you OT.

    edit: a note. My dad is a brain surgeon, so his grandson having a brain tumor has carried a terrible kind of familiarity so far. However, his input, advice and "translation" has been invaluable so far. For all the times I've consulted him on stupid little things that weren't related to his field, I feel even more blessed to have him now.

    2nd edit: the port is accessed using a special needle--- known as a "huber needle." been meaning to tell p5s all day :p
  2. cizastro cizastro is offline

    Tanzania, United Republic of

    Posts: 6,812
    Joined: Nov 08

    Aug 2nd, 2009 (8/2/2009 1:43am) in reply to hyacinthgirl

    Glad to hear that your son is doing well. We're all sending out positives vibes to you and the family.

    That little guy is one tough cookie.
  3. AFink93 AFink93 is offline

    Norwich, CT
    United States

    Posts: 14,383
    Joined: Mar 06

    Aug 2nd, 2009 (8/2/2009 1:43am) in reply to hyacinthgirl

    <3 ya Kristen. Glad hes getting better.
  4. hoops886 hoops886 is offline

    Matawan, NJ
    United States

    Posts: 7,247
    Joined: Jan 06

    Aug 2nd, 2009 (8/2/2009 1:45am) in reply to hyacinthgirl

    Love you Hya. Wish all you guys the very best :-)
  5. The Alchemist The Alchemist is offline

    Chicago, IL
    United States

    Posts: 9,612
    Joined: Jun 06

    Aug 2nd, 2009 (8/2/2009 1:46am) in reply to hyacinthgirl

    omg

    w000t we love u too
  6. Dr.GHouse Dr.GHouse is offline

    Essex, VT
    United States

    Posts: 9,693
    Joined: May 07

    Aug 2nd, 2009 (8/2/2009 1:47am) in reply to hyacinthgirl

    ZOMG! Hi Hya! Glad the kiddo is doing well! We love ya and the young one!

  7. UcouldBbettor UcouldBbettor is offline

    MN
    United States

    Posts: 758
    Joined: Oct 06

    Aug 2nd, 2009 (8/2/2009 1:49am) in reply to hyacinthgirl

    my prayers for you and your fam
  8. MUPokerPlayer MUPokerPlayer is offline

    MO
    United States

    Posts: 17,488
    Joined: Feb 05

    Aug 2nd, 2009 (8/2/2009 1:50am) in reply to hyacinthgirl

    well sounds like everything went as well as possible.

    keep fighting babe.

  9. Chazmental Chazmental is offline Thief

    Henderson, NV
    United States

    Posts: 15,201
    Joined: Sep 05

    Aug 2nd, 2009 (8/2/2009 1:51am) in reply to UcouldBbettor



    Glad to hear things are on the uptick. Keep the faith. All the love from the Mental's.
  10. ronkend ronkend is offline

    Bosnia and Herzegovina

    Posts: 5,588
    Joined: May 05

    Aug 2nd, 2009 (8/2/2009 1:52am) in reply to UcouldBbettor

    w00t - the little guy pwns. Modern medicine is rediculously awesome - will def keep ya in my thoughts.

    <3
  11. thefuture021 thefuture021 is offline

    Dallas, TX
    United States

    Posts: 8,797
    Joined: Apr 06

    Aug 2nd, 2009 (8/2/2009 1:52am) in reply to hyacinthgirl

    in my prayers
  12. Underdog Underdog is offline MVP of OT (self-proclaimed)

    Posts: 20,067
    Joined: Jan 05

    Aug 2nd, 2009 (8/2/2009 1:56am) in reply to hyacinthgirl

    Glad to hear good news. Always know you are loved, hya.
  13. bfactor bfactor is online now Server Clogger

    Posts: 22,146
    Joined: Sep 05

    Aug 2nd, 2009 (8/2/2009 2:06am) in reply to hyacinthgirl

    It's great to hear that things are looking good for the little guy. Keep your head up Hya, and welcome back.
  14. MissBecky MissBecky is offline if you're nasty

    United States

    Posts: 16,782
    Joined: Jun 07

    Aug 2nd, 2009 (8/2/2009 2:08am) in reply to Underdog

    wonderful news hya. i will keep you in my prayers. we you!

    for jacob: (i know he loves barney)

  15. fetaman fetaman is offline

    Holy See (Vatican City State)

    Posts: 3,259
    Joined: Oct 06

    Aug 2nd, 2009 (8/2/2009 2:09am) in reply to hyacinthgirl

    and when I say I am very happy, it is real.
    rare, and legible.
    not by choice, but by essence.

    i do pray each day, and as odd as it, there are good people in here I have never met, but know this is the case.

    so obv, glad, and send best.

    all in a true intent.

    blessings.

    *p*
  16. palmerjoe palmerjoe is offline

    United States

    Posts: 2,595
    Joined: Sep 07

    Aug 2nd, 2009 (8/2/2009 2:18am) in reply to hyacinthgirl

    Great news... hang in there all of you, things will only get better!
    Good things happen to good people...
  17. fish fish is offline

    Eugene, OR
    United States

    Posts: 1,338
    Joined: Jul 06

    Aug 2nd, 2009 (8/2/2009 2:20am) in reply to hyacinthgirl

    Oh hi der

    happy to hear Jacob is doing well!
     
  18. JoeSexAppeal JoeSexAppeal is offline

    MN
    United States

    Posts: 2,160
    Joined: Nov 08

    Aug 2nd, 2009 (8/2/2009 2:23am) in reply to fetaman

    Really sorry to hear about your son i hope everything works out for him and your family
  19. Defndrofangels Defndrofangels is offline

    CA
    United States

    Posts: 6,071
    Joined: Sep 08

    Aug 2nd, 2009 (8/2/2009 2:23am) in reply to AFink93

    That's awesome news...keep us posted. OT really cares for its members.
  20. curiousgeorge curiousgeorge is offline baby duck hat

    Las Vegas, NV
    United States

    Posts: 7,196
    Joined: Nov 07

    Aug 2nd, 2009 (8/2/2009 2:27am) in reply to palmerjoe

    first feta post i have ever understood. glad he is doing as well as possible right now. well wishes for the future.
  21. Camz Camz is offline

    Lafayette, LA
    United States

    Posts: 12,419
    Joined: May 06

    Aug 2nd, 2009 (8/2/2009 4:03am) in reply to hyacinthgirl

    awesome! i wish him and the family the best as his future treatment approaches
  22. Reech Reech is offline around

    Portland, OR
    United States

    Posts: 12,271
    Joined: Jun 07

    Aug 2nd, 2009 (8/2/2009 7:16am) in reply to hyacinthgirl

    best of luck, get well soooooon!

  23. Phi Phi is offline aka tennisee

    Posts: 16,250
    Joined: Mar 06

    Aug 2nd, 2009 (8/2/2009 8:10am) in reply to hyacinthgirl

    <3<3<3<3<3<3<3<3

    Hope things get nothing but better from here Hya!
  24. ECUgirl ECUgirl is offline

    Posts: 8,486
    Joined: Aug 07

    Aug 2nd, 2009 (8/2/2009 1:00pm) in reply to hyacinthgirl

    Glad the surgery went well, Hya. Keeping you and your little man in my thoughts and prayers. Best wishes for a full recovery!
  25. MenJr09 MenJr09 is offline

    Chicago, IL
    United States

    Posts: 619
    Joined: Feb 07

    Aug 2nd, 2009 (8/2/2009 1:06pm) in reply to hyacinthgirl

    glad to hear the good news, hang in there!!
  26. nadatell nadatell is offline

    Posts: 1,581
    Joined: Jan 06

    Aug 2nd, 2009 (8/2/2009 1:12pm) in reply to hyacinthgirl

    Glad to hear he's doing well
  27. LeftyC LeftyC is offline s1nnr's better half

    PA
    United States

    Posts: 1,899
    Joined: Nov 06

    Aug 2nd, 2009 (8/2/2009 2:13pm) in reply to hyacinthgirl

    great to hear!!! GLGL w/ chemo
  28. marc1313 marc1313 is offline

    United States

    Posts: 4,306
    Joined: Feb 08

    Aug 2nd, 2009 (8/2/2009 2:17pm) in reply to hyacinthgirl

    great to hear that he's doing well hya. Stay strong, you guys will get through this. Wish you all the best.
  29. Tim Lock Tim Lock is offline

    FL
    United States

    Posts: 7,834
    Joined: Nov 05

    Aug 2nd, 2009 (8/2/2009 2:18pm) in reply to hyacinthgirl

    Stay strong hya, long road ahead. You have OT with you every step of the way.

    lolz @ huber needle.
  30. TrafficKing TrafficKing is offline

    Tucson, AZ
    United States

    Posts: 3,566
    Joined: Mar 06

    Aug 2nd, 2009 (8/2/2009 2:20pm) in reply to hyacinthgirl

    gl with everything ill be prayin for u guys
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