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Jacob Update

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  1. hyacinthgirl hyacinthgirl is offline

    Albuquerque, NM
    United States

    Posts: 6,177
    Joined: Feb 06

    Sep 11th, 2010 (9/11/2010 8:00pm)

    I haven't done one of these for a while and someone inquired a little bit ago, so I thought I'd post here in case anyone else has been wondering.

    Jake's been doing very well lately. For almost his entire life, he threw up 4+ times per day, and the past few weeks he's stopped throwing up almost completely (relatively speaking). He only has "bad days" once in a while, usually right after his treatments.

    His appetite has increased, and combined with his lack of vomiting he's packed on a bunch more weight. He's still a skinny little guy, but over the last month has put on well over 2 pounds and weighed 23.6 pounds the last time he was on a scale... for him, that's huge!

    He's talking more and more and getting much braver about everything. I think all the weight he's putting on along with the fact that he appears to feeling better has really made him less anxious about life in general.

    The most recent MRI was done on the 3rd, and the results were favorable in that the tumor hasn't really changed size at all. We're told that no change is a "positive outcome." I'd clearly love to have MRI results come back one day and the whole thing just be completely vanquished, but I understand that's not very likely and thus I accept that this is good news for Jacob.

    What is also good news is that while the tumor appears to be unchanged in size, the amount of necrotic tissue seems to be increasing with each scan. That's an indication the chemo is helping kill the tumor from the inside out, and we're hopeful that it will basically collapse in on itself at some point.

    This collapse may be aided by another surgery in the near-ish future.

    Jacob's oncologist is going to send the MRI up to a surgeon in Denver (the same surgeon we visited in April for a consult) so they can discuss his options. The oncologist seems to think that this current chemotherapy regimen may have plateaued, and it makes me think in the coming weeks we will either see a new set of drugs, start seriously discussing another tumor resection, or both.

    Thanks again to everyone who inquires about Jacob. He's a bright and fantastic kiddo and his brothers are also doing well. I don't post any of this with intent to worry or dampen spirits. Most days we sail right along without ever worrying about a thing, and the only moments that "get to" me I've always got someone there for me.
  2. clwhat clwhat is offline

    GA
    United States

    Posts: 2,246
    Joined: Jun 07

    Sep 11th, 2010 (9/11/2010 8:02pm) in reply to hyacinthgirl

    so awesome!!!! really glad to hear...ot thoughts and prayers ftw!!!!!
  3. bfactor bfactor is offline Server Clogger

    Posts: 22,135
    Joined: Sep 05

    Sep 11th, 2010 (9/11/2010 8:04pm) in reply to hyacinthgirl

    Yessssssssssssss!!!!!!!!!! Smack that shit down son, that's how it's done. Jacob pwnage
  4. timthegem timthegem is offline

    Anonymous Proxy

    Posts: 16,559
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    Sep 11th, 2010 (9/11/2010 8:05pm) in reply to hyacinthgirl

    That is awesome news!! Thanks for the update. I'm sure the little guy will be on here posting fantasy football picks in no time.
  5. SluggerWV SluggerWV is offline A picture is worth a thousand words.

    Posts: 45,410
    Joined: Nov 05

    Sep 11th, 2010 (9/11/2010 8:13pm) in reply to timthegem

    fantastic news

    love and prayers for hya and jacob
  6. Braaak Braaak is offline

    Skillman, NJ
    United States

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    Sep 11th, 2010 (9/11/2010 8:16pm) in reply to SluggerWV

    bless you and your boy
  7. LeftyMark LeftyMark is offline Boss of Birds

    MA
    United States

    Posts: 22,782
    Joined: Jan 07

    Sep 11th, 2010 (9/11/2010 10:18pm) in reply to Braaak

  8. LadyLuck84 LadyLuck84 is offline

    Las Vegas, NV
    United States

    Posts: 3,548
    Joined: May 08

    Sep 11th, 2010 (9/11/2010 10:23pm) in reply to LeftyMark

    Thanks for the update. Always good to hear that things are progressing in the right direction! Continued prayers and best wishes for you and your family.
  9. SICKTIGHT311 SICKTIGHT311 is offline

    Long Beach, CA
    United States

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    Sep 11th, 2010 (9/11/2010 10:29pm) in reply to LadyLuck84

    That's a good update. Glad you are doing well. Keep being awesome hya!
  10. TUGreenWave TUGreenWave is offline

    United States

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    Sep 11th, 2010 (9/11/2010 10:34pm) in reply to SICKTIGHT311

  11. Niceguy Niceguy is offline I will find you.

    NV
    United States

    Posts: 18,944
    Joined: Jul 06

    Sep 11th, 2010 (9/11/2010 10:37pm) in reply to TUGreenWave

    In 13 years this kid's gonna get so much poon. Chicks dig scars.

    Keep it up little man.
  12. SpankyHamm SpankyHamm is offline

    Altamonte Springs, FL
    United States

    Posts: 15,762
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    Sep 11th, 2010 (9/11/2010 10:41pm) in reply to Niceguy

    Good update. You need to stop by more often.
     
  13. chatterbox09 chatterbox09 is offline

    Las Vegas, NV
    United States

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    Sep 11th, 2010 (9/11/2010 10:42pm) in reply to Niceguy

    Great news, esp. compared to some of the previous updates.

    You can already hear the noobs: "Who is this awesome Jacob guy and wtf is hyacinthgirl?"
  14. sonieme sonieme is offline

    Toledo, OH
    United States

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    Sep 11th, 2010 (9/11/2010 10:45pm) in reply to chatterbox09

    Best of luck to you and your child. I can't imangine how tough a road you are going down. Stay strong.
  15. tmac456 tmac456 is offline

    United States

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    Sep 11th, 2010 (9/11/2010 10:52pm) in reply to sonieme

    awesome to hear! <3333
  16. ericINtheX ericINtheX is offline

    Bronx, NY
    United States

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    Sep 11th, 2010 (9/11/2010 10:54pm) in reply to hyacinthgirl

     
    Originally Posted by hyacinthgirl View Post

    Thanks again to everyone who inquires about Jacob.

    Nono Thank You :)
    Great news...keep fighting lil fella
  17. Lenny Lenny is offline lail henny!

    Nashville, TN
    United States

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    Sep 11th, 2010 (9/11/2010 10:59pm) in reply to ericINtheX

    thumbsupdotgif

  18. dolphin13 dolphin13 is offline OT Vice MVP

    Chicago, IL
    United States

    Posts: 23,740
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    Sep 12th, 2010 (9/12/2010 12:07am) in reply to Lenny



    keep hanging in there. You and Jakob are stronger than I ever could be.
  19. Reech Reech is online now around

    Portland, OR
    United States

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    Sep 12th, 2010 (9/12/2010 2:14am) in reply to dolphin13

  20. pigalet42 pigalet42 is offline

    Matthews, NC
    United States

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    Sep 12th, 2010 (9/12/2010 3:55am) in reply to hyacinthgirl

    that's so awesome to hear about Jacob gaining weight (and not throwing up!!!) - well wishes and positive energy being sent your way <3
  21. undertheradar undertheradar is offline

    Goddard, KS
    United States

    Posts: 2,465
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    Sep 12th, 2010 (9/12/2010 4:20am) in reply to pigalet42

    awesome to hear!! Keep your spirits up
  22. skisteve skisteve is offline 2008-2009 Thread Killer Champ

    French Polynesia

    Posts: 30,452
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    Sep 12th, 2010 (9/12/2010 4:27am) in reply to undertheradar

    Way to go little guy! Way to hang in there hya, I can't imagine cleaning up vomit 4 times a day still (we had a lot due to reflux but dammmmmmmn!) that's got to be tough.
    Supermom of the year! You rock!
  23. zugg zugg is offline

    Costa Mesa, CA
    United States

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    Sep 12th, 2010 (9/12/2010 4:32am) in reply to skisteve

    I had forgotten all about this story..I am glad to hear things are getting better.
    And good job on being a wonderful and caring mother.
  24. BillMueller BillMueller is offline OT President

    Farmland, IN
    United States

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    Sep 12th, 2010 (9/12/2010 5:03am) in reply to hyacinthgirl

    good to hear! thanks for the update
  25. ripomatic ripomatic is offline

    Posts: 3,228
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    Sep 12th, 2010 (9/12/2010 5:18am) in reply to BillMueller

    good to hear......

    your post always remind me that all this petty BS in life is just that...petty
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